The 20 Best Tuberous Sclerosis Doctors Near Me in Grand Rapids, MI

Find the Top Tuberous Sclerosis Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 15 doctor with experience in Tuberous Sclerosis near Grand Rapids, MI. Of these, 11 are Experienced and 4 are Advanced.

Location
LocationClose
15 providers found
    Robin J. Cook
    Advanced in Tuberous Sclerosis
    Pediatric Neurology
    Advanced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is currently accepting new patients.

    Jason Umfleet
    Advanced in Tuberous Sclerosis
    Pediatric Neurology
    Advanced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jason Umfleet is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Umfleet has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Seizures. Dr. Umfleet is currently accepting new patients.

    Steven Deroos
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

    Learn about our expert tiers
    Seth P. Devries
    Experienced in Tuberous Sclerosis
    Pediatric Neurology | Family Medicine
    Experienced in Tuberous Sclerosis
    Pediatric Neurology | Family Medicine

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Seth Devries is a Pediatric Neurologist and a Family Medicine provider in Grand Rapids, Michigan. Dr. Devries has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children. Dr. Devries is currently accepting new patients.

    Anastasia Luniova
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Anastasia Luniova is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Luniova has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Epilepsy in Children, Absence Seizure, and Myoclonic Epilepsy. Dr. Luniova is currently accepting new patients.

    Joseph A. Petronio
    Experienced in Tuberous Sclerosis
    General Surgery
    Experienced in Tuberous Sclerosis
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, Hydrocephalus, and Craniectomy. Dr. Petronio is currently accepting new patients.

    Todd W. Vitaz
    Experienced in Tuberous Sclerosis
    Neurosurgery
    Experienced in Tuberous Sclerosis
    Neurosurgery

    Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Todd Vitaz is a Neurosurgery provider in Grand Rapids, Michigan. Dr. Vitaz has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Pituitary Tumor, Awake Craniotomy, and Turbinectomy. Dr. Vitaz is currently accepting new patients.

    Kirsten R. Wilhelm
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kirsten Wilhelm is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Wilhelm has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Epilepsy Juvenile Absence, Absence Seizure, Seizures, and Memory Loss. Dr. Wilhelm is currently accepting new patients.

    Jena M. Krueger
    Experienced in Tuberous Sclerosis
    Pediatric Neurology
    Experienced in Tuberous Sclerosis
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is currently accepting new patients.

    David E. Burdette
    Advanced in Tuberous Sclerosis
    Neurology | Family Medicine
    Advanced in Tuberous Sclerosis
    Neurology | Family Medicine

    Corewell Health Grand Rapids Hospitals Neurology Epilepsy

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    David Burdette is a Neurologist and a Family Medicine provider in Grand Rapids, Michigan. Dr. Burdette has been practicing medicine for over 40 years and is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Seizures, Lennox-Gastaut Syndrome (LGS), Generalized Tonic-Clonic Seizure, Memory Loss, and Deep Brain Stimulation.

    Rachel R. Fabris
    Advanced in Tuberous Sclerosis
    Advanced in Tuberous Sclerosis

    Corewell Health Grand Rapids Hospitals Neurology Epilepsy

    275 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Rachel Fabris is a Neurologist in Grand Rapids, Michigan. Dr. Fabris has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are Seizures, Memory Loss, Generalized Tonic-Clonic Seizure, and Epilepsy.

    Experienced in Tuberous Sclerosis
    Pediatric Nephrology
    Experienced in Tuberous Sclerosis
    Pediatric Nephrology

    Corewell Health Pediatric Nephrology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5201, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    11+ years
    Languages Spoken:
    English

    Ahmad Mashmoushi is a Pediatric Nephrologist in Grand Rapids, Michigan. Dr. Mashmoushi has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Feingold Syndrome, Nephrotic Syndrome, Congenital Nephrotic Syndrome, Alport Syndrome, and Kidney Transplant.

    Experienced in Tuberous Sclerosis
    Experienced in Tuberous Sclerosis

    Renal Associates Of West Michigan - Grand Rapids

    330 East Beltline Avenue Northeast, Suite 100, 
    Grand Rapids, MI 
     (3.4 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kseniya Filippova is a Nephrologist in Grand Rapids, Michigan. Dr. Filippova has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. Her top areas of expertise are End-Stage Renal Disease (ESRD), Acute Kidney Failure, Chronic Kidney Disease, and Autosomal Dominant Polycystic Kidney Disease. Dr. Filippova is currently accepting new patients.

    Experienced in Tuberous Sclerosis
    Neurology
    Experienced in Tuberous Sclerosis
    Neurology

    Mercy Health Hauenstein Neurosciences Neuro-Ophthalmology

    245 Cherry St SE Ste 204, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Jose Ronel is a Neurologist in Grand Rapids, Michigan. Dr. Ronel is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Metastatic Brain Tumor, and Papilledema.

    Experienced in Tuberous Sclerosis
    Neurology
    Experienced in Tuberous Sclerosis
    Neurology

    Office

    275 Michigan St NE Fl 11, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English

    Juan Ortiz is a Neurologist in Grand Rapids, Michigan. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Tuberous Sclerosis. His top areas of expertise are Drug Induced Dyskinesia, Pyruvate Carboxylase Deficiency, Seizures, and Dysarthria.

    Showing 1-15 of 15

    Last Updated: 04/28/2026

    What is the definition of Tuberous Sclerosis?

    Tuberous sclerosis is a genetic disorder that affects the skin, brain/nervous system, kidneys, heart, and lungs. The condition can also cause tumors to grow in the brain. These tumors have a tuber or root-shaped appearance.

    When should I see a Tuberous Sclerosis doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Tuberous Sclerosis doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Tuberous Sclerosis doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Tuberous Sclerosis doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Tuberous Sclerosis doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Tuberous Sclerosis doctor search results page. 

    Why is it important to get a second opinion from a different Tuberous Sclerosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Tuberous Sclerosis doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Tuberous Sclerosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Tuberous Sclerosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Tuberous Sclerosis doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Tuberous Sclerosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Tuberous Sclerosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Tuberous Sclerosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Tuberous Sclerosis Doctors by city